Sorry for being out of touch. Got diagnoses, getting medical care. Disabled pals know how exciting it can be to get answers after years of medical neglect and gaslighting about physiological illness followed by misdiagnosis and psych meds and denial and more neglect. Non-disabled folks: your sick friends are drained. We have to work so hard to get competent practitioners, any treatment, an actual care plan. Illness is not always curable or terminal. Since being vertical has been pretty much impossible for longer than a half hour and my spine is a bunch of gears grinding together with no cushion, I need IV fluids to function. For now. Looking into a more permanent setup than my nurse coming by at 1am to jab me, but for now I’m super grateful to have some care. | #DisabledAndCute #TheFutureIsAccessible #HospitalGlam
On Wednesday, @haymarketbooks announced a new anthology titled AGAINST ABLEISM. Yesterday, I co-wrote an open letter to Haymarket, the editors, and the broader poetry community with several other brilliant disabled writers. Posting here to reach pals here on Insta—this post is public and shareable! There is a Google Form embedded in the Medium article if you want to add your signature—even anonymous signees are important! If for any reason you cannot add a signature using the form, DM me and I will add you manually! Anyone is welcome to sign, but especially happy to see other sick and disabled, neurodivergent and autistic folks sign on! Non-disabled publishing and poetry supporters are also welcome. Please share widely!
Jesse Rice-Evans 